2010 Report: Team Sarcoma / Denmark – Vedersø

Saturday, July 24th at 11:00 a.m.
Vest Stadil Fjord Bird Sanctuary, Denmark

This year’s bicycle ride (the fifth) to the Vest Stadil Fjord Bird Sanctuary was a huge success. Sixteen persons participated in the 20 km ride, and the weather was perfect. Sunshine and a fresh wind from the prevailing direction: west! The age of the participants ranged from 8 (Aviaja) to 89 years (Hilda). Hilda joined us after the ride, though. Donations were made by friends and neighbours who were unable to participate in the actual ride.


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The 2009 Team Sarcoma / Vedersø Bike Tour

Saturday, July 18, 2009
Vedersø Klit, Denmark

UPDATE: Denmark’s Vedersø Bike Tour encountered stormy weather, but 9 faithful cyclists participated and raised $152 for sarcoma research.

The bike tour will start at 11 am from Karen and Erik’s house at Vedersø Klitvej 65, Vedersø Klit, DK-6990 Ulfborg. It will go to the bird sanctuary at Vest Stadil Fjord and will be approx. 25 kms long. Please bring a lunch bag, drinks and binoculars.

If you come from far away, it is possible to rent bikes at the camp site. There is also a hotel and a B&B place at Vedersø Klit. To sign up, please e-mail Karen at kkm@erikwinther.dk or call +45 97420621, preferably before July 1.

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2008 Team Sarcoma / Vedersø

UPDATE: Ten people participated in this event!

What: Bike Ride and Picnic
When: July 13, 2008 at 11:00 AM
Where: Denmark’s West Coast

Team Vedersø held its 3nd Annual 20 KM bike ride along the lovely west coast of Denmark beginning in the Village of Vedersø. It took place on July 13. The ride began at 11 AM at Vedersø Klitvej 65 and proceeded to the Vest Stadil Fjord Wild Life Refuge. A picnic followed the ride.

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2007 Team Sarcoma / Vedersø

Team Vedersø held its 2nd Annual 25 KM bike ride along the lovely west coast of Denmark beginning in the Village of Vedersø. It took place on July 22. The ride began at 11 AM at Vedersø Klitvej 65 and proceeded to the Vest Stadil Fjord Wild Life Refuge. A picnic followed the ride. Click here to download an announcement of the event (in Danish).

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2006 Team Sarcoma / The Core Team

The Team Sarcoma 2006 Bike Tour in Denmark was wonderful. There were 49 of us that participated the entire seven days. Several people also joined our group for a day or two along the way. The group consisted of sarcoma patients, survivors, caregivers, friends, or family members who have lost a loved one to sarcoma. Our youngest participant had just turned 2-years old and, it’ll be sufficient to say, that our oldest participants are in their mid-to-late 60s.

We were truly an international gathering, coming from Ireland, the Netherlands, New Zealand, Denmark, Portugal, Spain, Germany and several states within the US, including California, Colorado, Florida, Georgia, Illinois, Pennsylvania, Michigan, Minnesota, Missouri, New Jersey, New York, Texas, and Washington State. We represented a wide range of professions, occupations, and backgrounds. Ten different sarcomas were represented in our group — Ewing’s soft tissue sarcoma, Ewing’s bone sarcoma, osteosarcoma, angiosarcoma, liposarcoma, rhabdomyosarcoma, unidentified sarcoma. Askin’s tumor, mesenchymal chondrosarcoma, and gastrointestinal stromal tumors (GIST).

One evening after dinner, each person told their own personal sarcoma story and on another evening we had a “Luminary Service” on the beach in Marielyst. Both of these evenings were quite special, emotional and, for some, healing. Because everyone knew some of each other’s sarcoma story, as we walked along and read each bag, the names and the words meant so much more to each of us. Cassandra, with the help of others, arranged the luminary lights in the form of a heart. This is a scene few of us will forget.

People helped one another out when problems arose and there were many friendships made that will last a lifetime.

There were two groups of riders – the “pros” and the “others” – and a group of “walkers”. Denmark is not as flat as many people would have you believe as each day we biked up and down many, many hills. No matter what anyone has told you, Denmark is not flat like the Netherlands. This is a myth promulgated by the Danish Tourist Authority. However, Denmark is very beautiful, bike-friendly, and the people are amazingly hospitable.

For the “pros” the longest ride was 60 miles (96 KM) and there were several 40-mile (64 KM) days as well. The “others” put in a few 40 mile (64 KM) and 25 mile (40 KM) days as well. Everyone gave one another inspiration and hope – we cried, laughed, biked, walked, ate and drank together. Many displayed courage. Finally biking into the Rådhuspladsen in Copenhagen on the seventh and final day of the tour gave everyone a feeling of accomplishment. All in all, it was a memorable event.

A Note About Those Who Joined Us Along The Way

Among those who joined us for a day or two were Dr. Ole Steen Nielsen and his wife Karen. He is the head of the Department of Oncology at Aarhus University Hospital and the most recent past president of the Connective Tissue Oncology Society. Dr. Anette Duensing and her husband Dr. Stefan Duensing also joined us for a day and a half. She is a Research Assistant Professor of Pathology at the University of Pittsburgh’s Cancer Institute Hillman Cancer Center engaged in GIST research. Stefan is also involved in cancer research. Loïc, Elsebeth, Emma, Laura and Nina Folmer, a Danish family, joined us for dinner and the entire next day. Emma is a Ewing’s sarcoma survivor. Francisco, Elena and Daniel Casanova, a family from Spain, joined us for two and a half days. Daniel is a rhabdomyosarcoma survivor. The mother and sister of Henriette Schøning, one of the Danish sarcoma survivors in our group, joined us during the days we were on Fyn. Dr. Kate Long, who is a researcher at Copenhagen University, and her husband Anders joined us for a day of cycling on Møn. The husband and brother of Lotte Laursen, another Danish sarcoma survivor in our group, led our peloton into Copenhagen. The wife of Juergen Gerreser, a angiosarcoma survivor from Germany in our group, joined us at our banquet in Tivoli as did the wife and son of Henrik Lund from Fyntour, who made all of the local arrangements for the tour, drove the sag wagon, repaired the bikes, etc. Finally, Johnannes Nebel, a 12-year mesenchymal chondrosarcoma survivor, who lives in Denmark joined us at the banquet.

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2006 Team Sarcoma/Denmark (Vedersø)

Karen Møller of the University of Aarhus in Denmark organized a bike tour on the west coast of Denmark as part of Team Sarcoma 2006. Here is a note that we received from her a few days after their ride was over, “I’m so thrilled that the weather is with you – and the rest of us. I hope you’re having a good time. We had a very nice day. 16 people each did 25 km from Vedersø Klit to the Vest Stadil Fjord Bird Sanctuary, on to Stadil Church, Vedersø Church and back to the North Sea for a cooling swim. A good time was had by all!”

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