2010 Report: Team Sarcoma / First Affiliated Hospital of Sun Yat Sen University

“Sarcoma Knows No Borders” Signature and Free Consultation Event
Saturday, July 4th
Guangzhou, China

This event took place in the hall of the First Affiliated Hospital of Sun Yat-sen University on the morning of July 4th. It was an incredibly successful sarcoma event. There were more than 200 participants in the event including surgeons, nurses, postgraduate volunteers, sarcoma survivors and patients struggling against sarcoma, as well as their families and caring friends. We used several mediums to share information with the public, including large posters, displays and leaflets. Participants showed their understanding and support by signing our large poster. Postgraduate volunteers delivered leaflets to the public and explained basic information about sarcoma to those who were interested. Surgeons, including a famous oncology surgeon in China, gave free consultations to patients and their families.

Several local newspapers reported on the event, which let the public know what sarcoma is and let patients know how to deal with the disease and where to get help.

Due to scheduling issues, this Team Sarcoma event was held outside of International Sarcoma Awareness Week.

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2009 Report: Team Sarcoma / First Affiliated Hospital of Sun Yat Sen University

July 18, 2009
Guangzhou, China

The “Sarcoma Knows no Borders” Medical Student Education Program took place in the hall of the first affiliated hospital of Sun Yat-sen university on July 18, 2009. The event including free consultation, information about sarcoma in posters and leaflets, and signatures by those who support this sarcoma awareness event.

Sarcoma is rare disease and a relative unfamiliar word for the public, so this event sparked the interest of a lot of people. We had five posters and hundreds of leaflet introducing the basic knowledge of sarcoma, such as what is sarcoma, how to diagnose it, how to evade misdiagnosis and mistreatment, where to get the help, etc. In addition, a pediatric oncologist and surgeon answered questions posed by the audience, such as how to differentiate the benign and malignant mass and how patients should deal with these tumors. More than three hundreds people including physicians, medical students, patients and their families, and visitors signed on a large poster to support the sarcoma awareness events, from a 4-year old child to seventy-year old grandfather. Some children even drew lovely pictures beside their names.

The event lasted four hours. Four professors, ten young doctors and medical students and three nurses took part in the organization of the event. There were four hundreds leaflets delivered and more than 300 people signed the poster. This event increased the public awareness of sarcoma and equipped many people with useful knowledge of sarcoma.

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2009 Team Sarcoma / First Affiliated Hospital of Sun Yat Sen University

“Sarcoma knows no border” medical student education program
Saturday, July 18th
Guangzhou, China

Sarcoma is a rare disease. Most physicians and surgeons, including some orthopedists, do not have a clear idea of what is sarcoma, which leads to misdiagnosis and contamination operation. So the objective of this event is to educate medical students at the beginning of their careers. This event will take place in the campus of Sun Yat-sen University in the morning of July 18. It will last four hours. The event will include a poster exhibition explaining sarcomas and providing case studies. Leaflets will also be delivered to medical students. All the students who participate in this event will sign a poster. The event will be open to the public and will be covered by the local newspaper.

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2008 Team Sarcoma / First Affiliated Hospital, Sun Yat-sen University

The department of musculoskeletal oncology at the First Affiliated Hospital of Sun Yat Sen University held “Free medical treatment for sarcoma” on the morning of July 12th. This event was coordinated with the Liddy Shriver Sarcoma Initiative and was a part of International Sarcoma Awareness Week. The week enhances people’s awareness of sarcoma, promotes its early detection, diagnosis, and treatment, and aims to improve the prognosis of patients with sarcoma and collect funds for experimental research and clinical studies of sarcoma.

Sarcoma is a kind of tumor which originates from connective tissue such as nerve, muscle, cartilage, joint, bone and blood vessel. The incidence is about 20% in children tumors and 1% in adult tumors. Since its localization is extremely concealed, the tumors are often overlooked or misdiagnosed. However, sarcoma is dangerous, and more attention should be paid to it.

There were more than 30 medical personnel taking part in this activity. They provided medical treatment, health care, rehabilitation, psychological treatment and medication for sarcoma for free in the clinic service hall of the hospital. During the event, all the volunteers happily answered the patients’ questions and help them to resolve their problems. They also provided attentive alternative health service and humanistic care to patients.

A parent from Jiang Xi province saw our notice about free medical treatment, brought her child to the event, and saw the head of the bone tumor department, Professor Sheen Jing Nan. After obtaining a through medical history, providing a physical examination and obtaining x-rays, Professor Sheen considered the child probably suffered from femoral sarcoma and immediately admitted the child to the hospital for further medical treatment.

In order to increase public awareness, volunteers distributed over 1,000 brochures about sarcoma, which were published by the bone tumor department at the First Affiliated Hospital of Sun Yat Sen University. Volunteers provided medical services to more than 200 people during the activity. People were profoundly moved by the ethics of the medical personnel and gave the “thumbs up” to the free medical treatment.

Four local newspapers came to join this activity and reported this event in the newspapers the next day, further increasing awareness.

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2008 Team Sarcoma / TianJin Cancer Hospital

Report on the 2008 International Sarcoma Awareness Week Events organized by Tianjin Cancer Hospital
By Drs. Jin Zhang and Jilong Yang
Department of Bone and Soft Tissue Tumor

Under the leadership of President Hao Xishan and Wang Ping, supported by Departments of Communication, Medicine, out-patient diagnosis, Nursing, and Bone and Soft Tissue Tumor, the 2008 International Sarcoma Awareness Week Events, with the theme of ‘Sarcoma Knows no borders’, was carried out successfully from July 14-20, 2008.

This week-long event was initiated and supported by the Liddy Shriver Sarcoma Initiative, led by Dr. Jin Zhang, and Dr. Jilong Yang. From July 14th to 20th, we organized a number of activities including consultations, seminars, poster display, and a health-care lecture. The participants include sarcoma patients and their family members, doctors, nurses, and reporters from different media outlets. All together there were more than 650 participants. Among them there were more than 560 patients.

There were three major activities in this event.

1. The 2008 International Sarcoma Awareness Week – Sarcoma Knows No borders
This event was held in the conference room of the Department of Bone and Soft Tissue Tumor of Tianjin Cancer Hospital. Participants of 60 or so people included current in-patients, new patients and patients who are in remission, as well as doctors and nurses. The goal of this meeting was to increase awareness of “Sarcoma Knows No borders.” At this event, the sarcoma patients all wore wrist-bands and took a hand-in-hand picture.

2. Physical examinations for bone and soft-tissue sarcomas.
During the seven days between July 14th-20th, about 250 bone and soft-tissue sarcoma patients received examination at the Department of Bone and Soft-tissue Sarcoma at Tianjin Cancer Hospital. Doctors examined patients and provided clinical diagnosis and prognosis and suggestions for therapeutic plans. The doctors also provided patients general information regarding sarcoma.

3. Seminars and poster display on sarcoma and health-care lecture.
A series of posters about sarcoma knowledge were displayed in the hall of the Tianjin Cancer Hospital. Pamphlets were also distributed at the same locations. During the week, the doctors from Tianjin Cancer Hospital presented seminars about the cause, disease characteristics, diagnosis, and treatment of sarcoma to enhance the awareness of this disease.

On July 17, a health-care lecture about sarcoma was given by Dr. Zhang Jin in out-patient. There were 50 people attending the seminar. Many of the participators showed great interest in learning more about sarcoma and sarcoma awareness events. After the seminars, Prof. Zhang answered participants’ questions.

During the week, we also had materials on our website to increase the influence of the worldwide sarcoma awareness week. By the end of this month, about 250 other persons had seen the information on our website and interacted with us. About 200 patients wrote their questions on the site to seek help. We answered their questions, and they were very satisfied with the information. We also received about 55 letters asking for help (by mail or e-mail) from other provinces.

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2007 Team Sarcoma / TianJin Cancer Hospital

Under the leadership of President Hao Xishan and Wang Ping, supported by Departments of Communication, Medicine, Youth League, Chinese Anti-Cancer Society, Nursing, and Bone and Soft Tissue Sarcoma, the 2007 Tianjin Bone and Soft-Tissue Sarcoma Awareness Week was carried out successfully.

This week long event was initiated and supported by the US Liddy Shriver Sarcoma Initiative (or Foundation), led by Professor Wei Zhang of Texas M., D. Anderson Cancer Center, Dr. Jin Zhang, and Dr. Jilong Yang. During July 16th and 20th, we organized a number of activities including free diagnosis, seminars, poster display, and supporting group meetings. The participants include sarcoma patients and their family members, doctors, nurses, and reporters from different media outlets. All together there were more than 500 participants. Among them there were 406 patients.

There are four major activities in this event.

1. Free physical examinations for bone and soft-tissue sarcomas. During the five days between July 16th-20th, 356 bone and soft-tissue sarcoma patients received free examination at the Department of Bone and Soft-tissue Sarcoma at Tianjin Cancer Hospital. Doctors examined patients and provided clinical diagnosis and prognosis and suggestions for therapeutic plans. The doctors also provided patients general information regarding sarcoma.

2. Poster display on sarcoma. A series of posters about sarcoma were displayed in the hall of the Tianjin Cancer Hospital and Taoyuan Community Center. Pamphlets were also distributed at the same locations.

3. Seminars on sarcoma. At the Taoyuan Community Center of Hexi District of Tianjin, doctors from Tianjin Cancer Hospital presented seminars about the cause, disease characteristics, diagnosis, and treatment of sarcoma to enhance the awareness of this disease. There were 30 people who attended the seminar.

4. Sarcoma patient “supporting group” meeting with the theme “On the way to heath.” This meeting was held in the conference room of the Department of Bone and Soft-Tissue Sarcoma of Tianjin Cancer Hospital. Participants of 30 or so people included current in-patients, new patients and patients who are in remission, as well as doctors and nurses. The goal of this meeting was to have patients talked about their experience, encourage each other, and support each other to elevate their confidence to overcome their sarcoma. One Ewing sarcoma patients gave a detailed description of how he went from not knowing the disease and with constant worry and desperation to learning the disease and treatment options and elevating self confidence in overcoming the disease. This patient’s presentation was extremely well perceived among other patients. At this event, the sarcoma patients all wore the wrist-band provided by the Liddy Shriver Sarcoma Initiatives and had a picture taken together.

This awareness week was widely covered by media. Tianjin Daily, Daily Chronicle, Metropolitan Express, Tonight Daily, Health Daily etc all reported this event and published related articles. Tianjin Municipal TV News, Tianjin Hexin District TV station, Northern TV station all covered this event. Northern Net and People Net also reported activities of this awareness week. As a result, the hospital received many phone calls and letters about this activity.

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