G’day
My name is Tony ..I am from Queensland ,Australia..the best place on this planet to live……. I was diagnosed in 2002… on 20th September 2002 i had a Liposarcoma taken from the back of my let upper thigh…. this year 23rd jan 2008 .. on my 45th birthday I found another in my chest wall (round cell)….. It was taken with “clear margins”…

today 12th september 2008 I have had a xray of my chest ….. “all clear”…with love and life… I will be living it to the fullest……….T all the Ausies who are out there with a SARCOMA … lets get a TEAM TOGETHER ..
Tony

By Tony Webb on Sep 12, 2008

SARCOMA KNOWS NO BORDERS!!!

Hallo an alle,

mein Name ist Christian aus Deutschland, bin 45 Jahre alt.
Seit meiner Geburt bin ich geistig behindert und seit 2006 habe ich GIST (gastrointestinales Stroma-Sarkom).
Meine Familie, inbesondere meine Mutter und meine Schwester kümmern sich rührend um mich und es geht mir gut!
Die Sarkom-Tour 2008 in Essen, war für mich ein ganz besonderes Erlebnis und ich danke allemn Organisatoren weltweit für ihr Engagement und für dieses einzigartige Event!
Insbesondere danke ich meinem behandelnden Arzt Dr. Sebastian Bauer und dem Lebenshaus http://www.lh-gist.org/d/1039/.

Ich hoffe, dass es mir noch viele Jahre, Dank meiner guten Therapie und den Sarkom-Spezialisten, gut geht.
Im nächsten Jahr bin ich auf jeden Fall wieder dabei, wenn es heißt: Sarkom-Tour 2009.

Ganz liebe Grüße
aus Deutschland

Christian

http://sarkome-gist.de/

http://www.lh-gist.org/d/1039/

By Christian Mester on Aug 27, 2008

On Wednesday, July 16, I attended the Sarcoma Symposium being hosted by the Hospital for Sick Children in Toronto. All presentations made were excellent. It provided a variety of viewpoints and information with regards to Sarcoma diagnosis, treatment and current research activities.

As an attendee, I found the professional presentations most informative, and the survivor presentations very inspiring. I hope to attend again next year.

By Gemma on Jul 27, 2008

My name is Deborah and I am a 15 year Periosteal Osteosarcoma survivor. I participated this year in the Team Sarcoma online challenges at abc-survivors.net. I had a lot of fun and learned a lot more about sarcoma. I got the chance to educate my friends and family about this type of cancer. It is so hard to find information about or meet other people with sarcoma and it was even harder back when I was diagnosed. I am so glad that people have cared enough to create these groups and to GET INVOLVED!

By Deborah Johnson on Jul 20, 2008

Well I’m proud to say I took part in the online team sarcoma challenges this year! I’m from the UK and I couldn’t travel with the core team. It was great fun online and I think it brought us all even more closer together, the lighting a candle challenge was great as although we are all in different parts of the world it felt as if we were doing something together. Thank you for the people who went through the tough challenges on the core team! Well done!

By Katie Brooma on Jul 20, 2008

Hello everyone! I am Tammy, a member of ABCSurvivors online support group. I am a survivor of Ewing’s and have been for 21 years now. I was diagnosed at the age of about 11 or 12 and now I am in my 30’s. Thanks to the support group I have learned that I am not the only person who had feeling about what they went through and family that could not understand how I felt. I have found other who do understand and they have become my family too. I have enjoyed do the online challenges for the past week, I have learned more about myself and others. I can’t wait for next years!! Maybe I can be in some other activity besides only the online. I have been telling friends and family about the challenges all week and one friend went and looked at the site and couldn’t believe how many of us there are, she didn’t even know about sarcoma. Now she does. Thanks everyone!!! Hugs!

By Tammy on Jul 20, 2008

Hey everyone,
I got to participate in the Sarcoma event in Placerville, CA on Sat July 19. the excitement of being part of an event that I thought I would never see was just so overwheleming!! I was so excited to be there and was thrilled to meet some others and here there stories. Being diagnosed does not put you in an environment that you have the option to meet other adults going through a similiar situation–Thank goodness we have the web or I would really feel alone. This even allowed me to meet others and actually see how they are doing-reach out and hug them–and sit along side them to eat a hotdog-I can’t tell you how much that means to me. It was great-I am already looking forward to next years event!!!

By Cari on Jul 20, 2008

Hello everyone,
I’m Aisha one of the ABC Cafe members. I participated in the online events at ABC survivors website. It was a wonderful chance to be able to do something during Sarcoma awareness week while I was on treatment. Thanks a lot for everyone who helped to keep the events going. In general, the events were awesome by all means.

By Aisha on Jul 20, 2008

My name is Teddy and I was diagnosed with PNET in May 2008. At this time, I have just completed my first 2 rounds of chemo. I was fortunate, in looking for information on Ewing’s/PNET, to find the ABC Survivors online support group. They have been a wonderful source of information and encouragement for me. I couldn’t participate this year beyond the online events, but look forward to more involvement following treatment. I’m happy to report that the Arizona Cancer Center, where I’m being treated, has recently started a sarcoma support group and is building a specialized sarcoma treatment team.

By Teddy on Jul 20, 2008

Hi there. My name is Kelly and I am a survivor of high grade osteosarcoma. I participated in the ABC Survivors online event this past week! I really enjoyed reading about others’ experiences and sharing my own. I made it a family affair by reading each day’s challenges to my family and asking for their input! A huge thanks to Mary Sorens for organizing this event!

By Kelly Arens on Jul 20, 2008

On Friday, I participated in my first Sarcoma Awareness event at the Lombardi Center at Georgetown University in Washington DC. At this symposium, I learned that the Liddy Shriver Initiative had funded some of the research that was being reported on. I just want you to know that, by grant standards, yours might have been considered “modest” – it has certainly paid dividends in very promising research, for example in the areas of arresting lung metastatis in osteosarcoma.

And, I think you should also know that there might even be unexpected dividends: one young man who has been working in the lab at the Lombardi Center on this projects you’ve funded, is now trying to go to medical school. An osteosarcoma survivor himself, he has had the opportunity, I think, to see where real progress is being made in sarcoma research.

Who knows how many sarcoma patients he may ultimately help as it “pays it forward”?

It was a wonderful event – and Lombardi Center should be congratulated, and you, in turn, for helping to fund their research.

By Jean Williams on Jul 14, 2008

I was so saddened about not being able to participate untill Mary asked people to keep track of media about the event. My heart jumped right up: now this I CAN do… internet is right here and whenever I am able to go out I will buy papers as much as I can as we have an international newspaper-store quite nearby!
Go TEAM SARCOMA!!!

By Adrienne on Jul 11, 2008

I have been helping to organize a local team and an online team this year. It has been a fantastic experience.

Because I am involved in a couple of sarcoma support groups online, I have lost friends to sarcoma. I have seen others lose their spouses and children. Sometimes this cancer is so relentless that it leaves us feeling hopeless. Being involved with Team Sarcoma allows me to foster hope and change lives.

Dealing with this cancer can be lonely. There is little information out there about sarcoma, and some patients have never met another person with sarcoma. The treatments are often aggressive and difficult. By attending one of these events, you acknowledge the struggle of sarcoma patients and offer them hope – real hope for better treatments and more support.

By Mary on Jul 2, 2008

Hello all:

My name is Amy Dearinger, and my husband was diagnosed in June, 2007 with an unknown form of Metastatic (brain/lung) Soft Tissue Sarcoma at the age of 31. He has undergone two major surgeries, and has recently completed both radiation and chemotherapy. He seems to have broken the norm, and has had a good response to those treatments. We feel very blessed that he is doing so well, and want to do all we can to help raise funding for advanced research and awareness of this horrific cancer.

David and I have started the Kentucky Team Dearinger, Light up Sarcoma fundraiser that will take place the entire week of the International Sarcoma Awareness Week. During that week, team members will be illuminating luminaries honoring those battling Sarcoma and also those who have lost their fight to this terrible cancer.

Together with effort and prayer we will find that CURE! Keep the faith.

Go Team Sarcoma!

The Dearinger’s, David & Amy

By Amy Dearinger on Jun 20, 2008

Hi, I was checking for a team sarcoma in my area (So. of France, -Nice-Monaco-Menton) and I do not see any activity. is it know if any of the local Hospitals are involved with this?
Darrier-Ferrier Sarcoma is my little visitor, operated 3 times 2 years ago…no chemo or radio, fingers crossed so far so good. I would like to do something for my area.

By Tony on Jun 20, 2008

Hi everyone. I participated in Team Sarcoma UK last year and it was such a great experience. This year I have made some promotional videos for Team Sarcoma, Sarcoma UK and my own fundraising where I will split my funds raised. Please check them out and send them to all those participating in team sarcoma. Hopefully it will help get the word out.

Hope and healing,
Grant

Team Sarcoma 2008 Commercial
Team Sarcoma UK Commercial
Grant’s Cancer Update and Sarcoma Fundraising

By Grant on Jun 15, 2008

My name is Elizabeth and I am a forty-one year survivor of chondrosarcoma. I had an internal hemipelvectomy. A portion of my pelvis was removed. Last summer I attended the Team Sarcoma event in Vermont. Though I could not ride a bicycle, I went along each day with those who could. I made many friends among other sarcoma patients, and their family members. It was a memorable event in my life, and it fills my heart to know that there is hope for the future of sarcoma research. I will be attending this year at the Team Sarcoma event in Historic Placerville (Northern California) July 19th. Looking forward to seeing you there!

By Eli7abeth on Jun 12, 2008

Hello all, my name is Truus. I’m the mother of Paul Onvlee, who died of Ewings sarcoma in 2003. This year I’m organizing a team sarcoma event in the Netherlands on July 5: a bridge drive! Hopefully 200 people will attend (and at least as many will sponsor us or put an advertisement in the booklet we’ll publish). Our aim is to collect enough money for a research grant for sarcoma through the Liddy Shriver Sarcoma Initiative. See http://www.adgbridge.nl (Dutch though) and Mary’s facebook. I have attended the Denmark and Vermont main event bike tour in 2006 and 2007 and look forward to this year’s main event (if only because we’ll finally have a ‘flat’ countryside). Looking forward to meet you all, Truus

By Truus van der Spek on Jun 11, 2008

Hi my name is Patti Dempsey in Aug 06 I was diagnosed with Liposarcoma and it showed it’s ugly head again July 07 and fortunately for me, the 2nd time, I found a wonderful man named Dr Samuel Singer, from Memorial Sloan Kettering, who helped give me my life back. I am getting family & friends together for our 1st walk and looking for donations and sponsors to help with money for more research which is so needed. I felt I must give back in honoring my Doctor who has such a passion to find a cure and for all of the people with this disease who cannot walk. I am so excited about doing this. God Bless All who have been touched by this horrible monster.

By Patti Dempsey on May 20, 2008

I was diagnosed with a pelvic leiomyosarcoma in 2006. After surgery, radiation and chemo I am now “No Evidence of Disease” and hoping to stay that way! My wife, Yvonne, and I will be commemorating our 40th wedding anniversary by joining with others in Germany for the Team Sarcoma bicycle ride. We hope that our participation will increase awareness of family and friends to sarcoma: “the forgotten cancer” and financially support the Liddy Shriver Sarcoma Initiative. We look forward to meeting other members of Team Sarcoma.

By Alan Nishio on May 18, 2008

Denver Colorado:
I was diagnoised with Leiomyosarcoma in April 2008. The Hotel Monaco and I will be hosting a live and silent auction on July 10, 2008. We will be celebrating life for all people touched by Sarcomas. We have just started the planning of the event but will post more details soon.

By Lori Cavagnaro on May 18, 2008

Hello, everyone. My name is Yang jilong. I am an attending doctor in the Department of bone and soft tissue tumor of Tianjin Cancer Hospital. Last year we held a successful event to increase awareness of sarcoma. There were about 300 people attending the event. This year we are going to do this and make more advances. One PNET patient will come to Germany to attend the Sarcoma Bike Tour 2008, and he will share his experience with sarcoma. Also, everyone can contact with me about the treatment, prevention of the sarcoma, I and my hospital welcome everyone! If you have any question about sarcoma, contact with me with on hesitation. I will do my best to help everyone!

By Jilong Yang on May 18, 2008

I’m taking my role as soccer mom to the fullest! My 20 year old son, Logan was diagnosed Oct. ‘07 with osteosarcoma. He has had a hemipelvectomy (amputation of left hip and leg). He has been involved in soccer since age 4 and was at college level play when diagnosed. We are proud to organize 2008 Team Sarcoma, Soccer ‘Round the Clock and will be playing 24 hours of soccer in our community!

Our team consists of international friends who are soccer players, referees and Logan’s soccer coaches from Vogelsinger Soccer Aacademy who are a worldwide group of amazing people! Let’s go team!

By Lori Brasic on May 10, 2008

Hello, my name is Sandra. I work for the Children’s Cancer Research Institute in Vienna, Austria, and am responsible for organizing a science communication project entitled “Overcoming Cancer With Research“. The aim of our project is to raise awareness for cancer occurring in children and teenagers and to inform the general public about how research contributes to develop successful therapy strategies.

In this context, I got to know Bruce Shriver, the story of his daughter Liddy and the sarcoma initiative. I will support the Team Sarcoma Initiative by inviting Austrian people (hobby cyclists, families,…) to join in by supporting the core team cycling from Greifenstein to Vienna. For me, getting to know people such as Bruce, Bev, Mary and others who strive all their efforts to raise awareness for an insidious disease is exciting, wonderful, inspiring and encouraging.

By Sandra on May 6, 2008

Hello, my name is Kelly Marie. I am a Ewing Sarcoma survivor who will be attending the Germany & Austria “core Team 2008″! I’m proud to share, my caregivers are going with me, my mom and dad, younger sister and husband! We are all from California and have started training by walking together and riding bikes. I’m so excited to meet the team members!

By Kelly on Apr 25, 2008

Hi, My name is Ashley. I am organizing a Team Sarcoma event in Nashville, TN in memory of my boyfriend, Frank Shafer, III. I am also a teacher at a local school and have many students who are excited to get involved in the cause. For me, this is a meaningful way to remember Frank and celebrate his life. Also, it is a great way to educate others about Sarcoma and what they can do to help.

By Ashley on Apr 23, 2008