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	<title>Team Sarcoma Initiative</title>
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		<title>Tracey Lynn Ward, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6697</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6697#comments</comments>
		<pubDate>Sun, 29 Aug 2010 12:00:57 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6697</guid>
		<description><![CDATA[Tracey Ward, 10/12/78 to 1/6/99.
At the age of seventeen, Tracey found a lump in her jaw. The biopsy diagnosis was osteosarcoma of the mandible. As Tracey’s mom, I was at a loss:  &#8221;How do I get through this?&#8221; I needn’t have worried; Tracey revealed to me what it is to be strong.
I’m not saying it [...]]]></description>
			<content:encoded><![CDATA[<p>Tracey Ward, 10/12/78 to 1/6/99.</p>
<p>At the age of seventeen, Tracey found a lump in her jaw. The biopsy diagnosis was osteosarcoma of the mandible. As Tracey’s mom, I was at a loss:  &#8221;How do I get through this?&#8221; I needn’t have worried; Tracey revealed to me what it is to be strong.</p>
<p>I’m not saying it wasn’t hard, or that she just superheroed her way through it. I’m saying she endured with grace and dignity, and she triumphed through her abilty to transcend her circumstances. We went about the business of cancer, sarcoma specifically, which is a category in itself.  She had three months of chemotherapy &#8211; and there was not only that to deal with, but the aftereffects, which actually made chemo look like a walk in the park. She had the other ill effects: hair loss, fevers, mouth sores so painful she couldn’t talk, and a twenty-three hour surgery.</p>
<p>Then, there was a brief respite, a glimpse of happiness, of a future . . .The old was Tracey back, like the one who had never been sick, who might have spent that year just hanging out with friends, staying up late, giving her parents the occasional hard time. I didn&#8217;t think that was an option anymore. Her mind was made up to go to college and become a nurse, specifically to work in a neonatal unit. I admit to being surprised; thinking she would never want to step into a hospital again.</p>
<p>Sadly, Tracey didn’t have enough time to achieve her goal, but she never gave up or gave in. She worked and went to school almost to the end. Life without her does get bleak, but I strive to match her dignity, strength, and enormous courage in the face of devastation. She is my hero and lights my path when I can’t see for the darkness.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Patricia from Valparaiso, Indiana.</em></p>
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		<title>Irene S. Jensen, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6694</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6694#comments</comments>
		<pubDate>Sat, 28 Aug 2010 12:00:01 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6694</guid>
		<description><![CDATA[My mother, Irene Jensen, is my hero.  She lived with sarcoma for six years. She passed away on Mother&#8217;s Day, 2010.  She was the strongest person I know, and she taught me so much about hope and survival these past six years.  I will miss her every day of my life.
This Team Sarcoma Everyday Heroes entry [...]]]></description>
			<content:encoded><![CDATA[<p>My mother, Irene Jensen, is my hero.  She lived with sarcoma for six years. She passed away on Mother&#8217;s Day, 2010.  She was the strongest person I know, and she taught me so much about hope and survival these past six years.  I will miss her every day of my life.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Kari from Burnsville, Minnesota.</em></p>
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		<title>Tom Ivanov, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6691</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6691#comments</comments>
		<pubDate>Fri, 27 Aug 2010 12:00:16 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6691</guid>
		<description><![CDATA[Four years ago, my thirteen-year-old son, Tom Ivanov, was diagnosed with Ewing sarcoma in distal tibia. We live in Israel. Tom was treated according to the Euro Ewing-99 protocol. He had limb salvage surgery because of a small localized tumor. Unfortunately, the histological response to therapy was poor. Chemotherapy was continued according to the protocol until June 2007, but on [...]]]></description>
			<content:encoded><![CDATA[<p>Four years ago, my thirteen-year-old son, Tom Ivanov, was diagnosed with Ewing sarcoma in distal tibia. We live in Israel. Tom was treated according to the Euro Ewing-99 protocol. He had limb salvage surgery because of a small localized tumor. Unfortunately, the histological response to therapy was poor. Chemotherapy was continued according to the protocol until June 2007, but on May 2008, a chest CT revealed a few pulmonary nodules and a biopsy showed that this was a relapse. We continued chemo with four courses of Cyclophosphamide and Topotecan and then three courses of Irinotecan and Temozolomide.</p>
<p>On November 2008, Tom had bilateral thoracotomies; the eight nodules, which were removed, still contained viable Ewing&#8217;s. On December 2008, he had an autologous stem cell transplantation with high dose Melphalan and Threosulphan. He recovered very quickly from the lung surgery and the transplant and was in excellent physical condition.</p>
<p>However, in September 2009, new tiny lung nodules appeared. This time our doctor told us that there were not treatment options for a cure. We don&#8217;t believe it. We want to fight, and we created a campaign in Israel to raise money and get treatment in USA. Tom&#8217;s story was on TV and in newspapers. Many people from all over the country donated to us, and now we are in Houston, where Tom received treatment and lung radiation at M.D. Anderson. Our doctor is Pete Anderson, and he gives us hope. It is very difficult and stressful to stay here so far from the home and alone (my husband and my older son stayed in Israel), but we know that this is the only option to find a cure. Tom is very positive, strong, and smart. He is full energy and humor. HE IS MY HERO!</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Irena from Rishon Le Zion, Israel. </em></p>
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		<title>Ammie Joy Scott, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6687</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6687#comments</comments>
		<pubDate>Thu, 26 Aug 2010 12:00:34 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6687</guid>
		<description><![CDATA[How do I put it into 300 words? The way Ammie changed my life could be a book. She was the most amazing, down-to-earth, dearest friend I have ever met.
Ammie and I met at a time in my life when I needed a friend, and Ammie truly was sent to me from the Angels. I only got [...]]]></description>
			<content:encoded><![CDATA[<p>How do I put it into 300 words? The way Ammie changed my life could be a book. She was the most amazing, down-to-earth, dearest friend I have ever met.</p>
<p>Ammie and I met at a time in my life when I needed a friend, and Ammie truly was sent to me from the Angels. I only got to know Ammie for 6 months to the date of her going to heaven. I met her at the airport, and she placed a little note in my hand wishing me good luck with all her details. That was the beginning of our special friendship, one that I treasure every day.</p>
<p>Ammie was inspirational; she was spiritual; she took life as it was and didn’t take anything for granted. Ammie was a friend to everyone that needed her; never once was she not  there for me. Ammie had been diagnosed with synovial sarcoma, and if it affected anyone else I know, they would’ve let it rule their life . Ammie was never scared, always looking towards the future, excited at what it held and ready for whatever life was throwing at her.</p>
<p>The way Ammie has touched my life has truly changed me and blessed me. Not a day goes by that I don’t imagine her smiling face or her telling me it will all be ok. Only 6 months I got to know this precious girl, 6 months of friendship, a  soul sister that I believe I have met before and I will meet again. I am saddened that I didn’t know her in this life longer; but what’s meant to be will be, and I find comfort that  this angel is now above watching over us. Ammie Joy Scott: 21.10.1980 – 17.11.2008, I love you, thank you for your friendship.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Emma from Mackay, Queensland in Australia.</em></p>
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		<title>Jordan Lindsey, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6684</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6684#comments</comments>
		<pubDate>Wed, 25 Aug 2010 12:00:01 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6684</guid>
		<description><![CDATA[Jordan Lindsey left a legacy when he left this world. As his journey began, his mother started a site for updating loved ones on his progress. I say &#8220;progress&#8221; because Jordan never looked at his fight as a deadly one-it was a spiritual one. When they told him his diagnosis he knew the &#8220;worldly&#8221; outlook [...]]]></description>
			<content:encoded><![CDATA[<p>Jordan Lindsey left a legacy when he left this world. As his journey began, his mother started a site for updating loved ones on his progress. I say &#8220;progress&#8221; because Jordan never looked at his fight as a deadly one-it was a spiritual one. When they told him his diagnosis he knew the &#8220;worldly&#8221; outlook for his prognosis, but the world just didn&#8217;t know Jordan Lindsey&#8230;or his momma! He fought that fight with the most sincere appreciation for life and for the Lord every day.</p>
<p>Every time that his mother updated us on Jordan&#8217;s condition it was always full of appreciation for what others had done for him and for prayers for others. With Jordan your heart hurt for the pain he was going through, but it was also so uplifting to hear how he was determined to beat it. The prayer request everyday was for healing along, with a list of people that were battling cancer.</p>
<p>Although Jordan suffered, it was not in vain. I know that his determination touched so many lives because it touched mine.  He touched our whole community. As his journey with sarcoma came to decisions of what the doctors thought was inevitable, he began to fight even harder and refused to put his life in numbers or months. He always managed to keep his smile bright and his spirit even brighter for all those around him.  One definition I found for the word &#8220;hero&#8221; is a man distinguished by exceptional courage and strength. Well that just about sums Jordan Lindsey up.  Enough said.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Michelle from Tupelo, Mississippi.</em></p>
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		<title>Rev. William Rozario, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6681</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6681#comments</comments>
		<pubDate>Tue, 24 Aug 2010 14:08:29 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6681</guid>
		<description><![CDATA[My Mom, Susan Josephine Yuers, recently passed away after her battle with carcinosarcoma, a very rare uterine cancer. The prognosis is dismal and she fought to overcome for just over 2 years. She never gave up and her strength was amazing.
The last few months, my Mom was in and out of the hospital. That is where my Mom [...]]]></description>
			<content:encoded><![CDATA[<p>My Mom, Susan Josephine Yuers, recently passed away after her battle with carcinosarcoma, a very rare uterine cancer. The prognosis is dismal and she fought to overcome for just over 2 years. She never gave up and her strength was amazing.</p>
<p>The last few months, my Mom was in and out of the hospital. That is where my Mom met William.  They met at the Valley Care Medical Center in Pleasanton, CA when my Mom was hospitalized for a blood infection (sepsis).  My Mom and William had an instant, special connection; he was an Angel to her.  He gave her a great gift no one else could provide: the gift of peace that comes with true faith. He soothed her fears of what was to come. The conversations they had were not shared with us in any great detail, but his words and presence brought her comfort and support beyond anything her family could provide. We will never know everything they shared; all I know is my Mom was blessed to have him minister to her near her final days. Our family will hold him most dear in our hearts always.</p>
<p><em>This <a href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Kim from Martinez, California.</em></p>
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		<title>Codi Leigh Sharkey, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6676</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6676#comments</comments>
		<pubDate>Mon, 23 Aug 2010 21:49:48 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6676</guid>
		<description><![CDATA[My hero is my daughter, Codi Leigh. Our lives changed in November of 2008 when she was diagnosed with synovial sarcoma. The doctor didn&#8217;t know what he was removing when he took a tumor out of her foot. She was in good spirits, looking forward to the pain in her foot going away, then wearing high heels out [...]]]></description>
			<content:encoded><![CDATA[<p>My hero is my daughter, Codi Leigh. Our lives changed in November of 2008 when she was diagnosed with synovial sarcoma. The doctor didn&#8217;t know what he was removing when he took a tumor out of her foot. She was in good spirits, looking forward to the pain in her foot going away, then wearing high heels out for her 21st birthday. A week later the pathologist called. The tumor was a rare form of cancer, and he told us to get to the Mayo clinic ASAP.</p>
<p>A few days later, there we were. The team of doctors and nurses were awesome, but things needed to move quickly as the tumor was removed in pieces allowing the vicious cancer cells to hasten through her body. Codi was joking around with the surgeon when she asked if they were going to have to cut off her foot. Needless to say, the answer was yes. Time was of the essence. With quiet dignity and a tear rolling down her face, Codi&#8217;s answer was, &#8220;Let&#8217;s do it. I want to be home for Thanksgiving because my brother is coming home.&#8221;</p>
<p>Codi&#8217;s strength and never-give-up attitude was the glue that held everything together. When going into surgery, we didn’t know if the amputation was going to be just her foot or her whole leg (it ended up as a below the knee). While they were wheeling her away, she was discussing with the nurse how she was going to design shoes for prosthetics, something for the 20-something age group. Codi had such courage, an upbeat attitude and way of looking at things, whether she was shaving the last of her hair off, puking from chemo, making jokes about being stumpy, or learning to walk with a prosthesis. She fought the good fight and won, with humor, dignity, strength and courage.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Laurie from Stockton, Missouri.</em></p>
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		<title>Zachary Hartsell, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6667</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6667#comments</comments>
		<pubDate>Sun, 22 Aug 2010 13:00:37 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6667</guid>
		<description><![CDATA[On April 9th, the life of our family changed forever.  Almost a thousand miles away, in Eau Claire, Wisconsin, our grandson was admitted to the hospital.  On April 14th, Zachary Hartsell was diagnosed with Stage IV Ewing’s sarcoma. The scans revealed a tumor the size of a grapefruit on his left pelvis. The tumor had fractured his [...]]]></description>
			<content:encoded><![CDATA[<p>On April 9th, the life of our family changed forever.  Almost a thousand miles away, in Eau Claire, Wisconsin, our grandson was admitted to the hospital.  On April 14th, Zachary Hartsell was diagnosed with Stage IV Ewing’s sarcoma. The scans revealed a tumor the size of a grapefruit on his left pelvis. The tumor had fractured his pelvis. The scans also showed four “hot spots” on his lungs, one on the back of his skull, one on his right shoulder, and one on his right thigh.   On April 15th, the battle to win this ugly war began.   After three strong treatments of chemo, tests were done again and the tumor on the pelvis and the hot spots on his lungs were not seen. The other spots were not “glowing“ like before.</p>
<p>The cancer and the chemo have taken a toll on Zach&#8217;s body. He struggles to walk; he struggles to stand; he has a port in his chest for the chemo and other medicines and a feeding tube in his stomach for when he is unable to eat on his own. All his hair is gone and his skin is discolored. He needs help with lots of things that he didn&#8217;t before. But he still smiles and pays no attention to people when they stare at him. He is totally our hero!</p>
<p>We can no longer give Zach a big hug like before because his body is so thin and weak and it feels like he might break. So we hug him gently and plant kisses on his beautiful bald head. His attitude is great and his faith is strong. He believes in God and he believes God will heal his body. When anyone asks him what they can do for him the answer is always the same “keep praying&#8221;.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Janie from Newport, Tennessee.</em></p>
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		<title>Matthew Jeffrey Sacket, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6664</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6664#comments</comments>
		<pubDate>Sat, 21 Aug 2010 13:00:18 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6664</guid>
		<description><![CDATA[My hero is my son Matthew J. Sackett, whom I lost to osteosarcoma on June 12, 2009.  Matthew lived a short but full life and taught me the meaning of bravery, positivity and love. Matthew was a bright, promising young man who fought the fight, fought it hard, and was a true inspiration to all [...]]]></description>
			<content:encoded><![CDATA[<p>My hero is my son Matthew J. Sackett, whom I lost to osteosarcoma on June 12, 2009.  Matthew lived a short but full life and taught me the meaning of bravery, positivity and love. Matthew was a bright, promising young man who fought the fight, fought it hard, and was a true inspiration to all around him. He was a true warrior and never said &#8220;why me,&#8221; but wondered, instead, &#8220;How can I learn from this and help others?&#8221; His legacy will be that he made the world a better place. &#8220;Don&#8217;t cry because it&#8217;s over, smile because it happened&#8230;.&#8221;</p>
<p>We are so thankful that we had you for 23 years, Matt. Even though your life was short, you touched a lot of people&#8217;s lives with your beautiful spirit, smile and big brown eyes.</p>
<p><em>This <a style="color: #0071bd" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Beth from Ferndale, Michigan.</em></p>
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		<title>Andrea Grace, a Sarcoma Hero</title>
		<link>http://www.team-sarcoma.net/everyday-heroes/6661</link>
		<comments>http://www.team-sarcoma.net/everyday-heroes/6661#comments</comments>
		<pubDate>Fri, 20 Aug 2010 21:44:35 +0000</pubDate>
		<dc:creator>Team Sarcoma</dc:creator>
				<category><![CDATA[Everyday Heroes]]></category>

		<guid isPermaLink="false">http://www.team-sarcoma.net/?p=6661</guid>
		<description><![CDATA[In 2008, newly diagnosed with MPNST lung metastasis, I was scared and in desperate need of support. I created a care page documenting my experience and had the pleasure of meeting Andrea Grace, who had compiled a list of sarcoma friends after having lost her cousin, Nick, to the disease herself. Andrea connected many of [...]]]></description>
			<content:encoded><![CDATA[<p>In 2008, newly diagnosed with MPNST lung metastasis, I was scared and in desperate need of support. I created a care page documenting my experience and had the pleasure of meeting Andrea Grace, who had compiled a list of sarcoma friends after having lost her cousin, Nick, to the disease herself. Andrea connected many of us on care pages and  with a caring bridge. I found a wonderful community of patients who have now become my friends.</p>
<p>Andrea took her dedication to sarcoma patients further by creating Nick and Friends Sarcoma Foundation to honor her cousin.  She raises funds for research, advocates for awareness, and does the great work of fostering relationships between patients and their families. She and her husband spend countless hours maintaining their website, managing their facebook group, and researching new ways to promote awareness. She has raised funds for research and encourages the heart of her foundation through her many friendships.</p>
<p>As a single mother without much family support, it was easy for me to feel lost and alone. I now know that I am not alone. Through Andrea&#8217;s efforts, we have funded a Ewing&#8217;s Sarcoma study, coordinated a drive to deliver stuffed animals to sick children, and assisted several friends with serious financial problems.  Though the foundation has only been in business one year, it has grown exponentially and has united an active group of warriors whose passion is to eliminate this disease with a cure.  The work we do is priceless.  Together, we WILL find a cure; and because of Andrea, we know we are not fighting alone.</p>
<p>Andrea has been an inspiration to all of us and has positively touched the lives of so many. She is a true hero.</p>
<p><em>This <a style="color: #0071bd; text-decoration: none;" href="http://team-sarcoma.net/everyday-heroes">Team Sarcoma Everyday Heroes</a> entry was submitted by Kathy from Hanover Park, Illinois.</em></p>
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